Daisy’s story
Written by Mum Emma

Daisy was born on 10th September 2010, weighing a very healthy 8lbs 4. Everything was fine for the first 3 months then on New Year’s Eve 2010 she got diagnosed with hip dysplasia and was put in a hip harness for 4 months; this seemed to solve the hip problem!

Then we noticed she had very low muscle tone and wasn’t doing the things a normal 4-5-month-old should be doing, struggling to hold her head up and generally floppy.

On July 14th 2011 Daisy was very poorly, so I took her to tour GP. She was prescribed antibiotics for a throat infection! Within half an hour of the appointment, I noticed her breathing was strange, so we were rushed to hospital where an X-ray showed that Daisy had a chest infection! The next few days, she went downhill, so had to be ventilated and taken to the Evelina Children’s Hospital! It was there she was diagnosed with SMA (Spinal Muscular Atrophy). Our lives were thrown upside down!!

We were then moved to the Brompton, where unknown to us, we would be spending a great deal of time! Despite everything Daisy has been through (and she’s been through a lot), she is such a happy little girl! We are so grateful to everyone at The Royal Brompton for everything they have done.

More families we have helped

Edward's Story
Edward David Nash was born with AVSD (Atrioventricular septal defect). This condition had been picked up prenatally, so we knew what was to come. Edward often had cold hands and feet and a very pale complexion due to poorly oxygenated blood. He would also struggle to feed, becoming breathless and tired. At four and a half months old, Edward was admitted to the Royal Brompton Hospital Children’s Cardiac Unit for his planned heart surgery.
Daisy’s Story
Daisy was born in September, weighing a very healthy 8lbs 4. Everything was fine for the first three months, then on New Year’s Eve, she was diagnosed with hip dysplasia and fitted with a hip harness for four months. This seemed to solve the problem, but soon after, we noticed she had very poor muscle tone and wasn’t doing the things a typical 4-5 month old should be doing, like holding her head up, and she was very floppy.
Isabel’s Story
I was 30 weeks pregnant when I discovered our baby was going to need heart surgery following her diagnosis of Coarctation of the Aorta, as well as a VSD (Ventricular Septal Defect) and three ASDs (Atrial Septal Defects). Our world fell apart; we had never even heard of these conditions before, and I felt terrified.

What are you searching for?

Popular Searches