Daisy was born on 10th September 2010, weighing a very healthy 8lbs 4. Everything was fine for the first 3 months then on New Year’s Eve 2010 she got diagnosed with hip dysplasia and was put in a hip harness for 4 months; this seemed to solve the hip problem!

Then we noticed she had very low muscle tone and wasn’t doing the things a normal 4-5-month-old should be doing, struggling to hold her head up and generally floppy.

On July 14th 2011 Daisy was very poorly, so I took her to tour GP. She was prescribed antibiotics for a throat infection! Within half an hour of the appointment, I noticed her breathing was strange, so we were rushed to hospital where an X-ray showed that Daisy had a chest infection! The next few days, she went downhill, so had to be ventilated and taken to the Evelina Children’s Hospital! It was there she was diagnosed with SMA (Spinal Muscular Atrophy). Our lives were thrown upside down!!