On the 10th July 2013, Edward David Nash was born at 3:04pm, with AVSD (Atrioventricular septal defect). This condition had been picked up prenatally, so we knew what was to come. Edward often had cold hands and feet and a very pale complexion due to poorly oxygenated blood being pumped around his body. He would also struggle to feed, becoming so breathless and tired. He was put onto high-calorie milk to help him grow and gain weight in preparation for his surgery.
At four and a half months old, weighing 10lb, Edward was admitted to the Royal Brompton Hospital Children’s Cardiac Unit, ready for his planned heart surgery. After a seven-hour operation, we could finally see Edward in the Paediatric Intensive Care Unit (PICU). He was almost unrecognizable, as so many tubes and wires were on him. Edward proved how strong he was as just 48 hours after the surgery, his ventilator was removed, and over the next two days, the wires and tubes were removed one by one.
Four Days after the surgery, Edward was moved onto Rose Ward, where despite his obvious discomfort, he still managed to smile at the nurses. Edward recovered very quickly but did suffer a set-back when he caught a blood infection, resulting in a few extra days’ stay in hospital for antibiotic treatment. Ten days after having AVSD repair, Eddie was allowed to go home, which put a smile on his face, as well as ours, just in time to start opening his advent calendar!
Eddie has since made a full recovery and, along with all the family, enjoyed a very happy 1st Christmas and was spoilt rotten. So spoilt in fact, he had to take two days to open all his presents! Edward finished his feeds in record time and had very warm hands and a healthy glow. Seven weeks post-op, Edward went back to the Royal Brompton for a check-up, where, much to our surprise, we discovered his left valve was leaking and, therefore, he would need more surgery later in the year.
Despite all this, Edward is the happiest, cheekiest, most affectionate little boy, who smiles at everyone he meets. We would like to thank all the doctors and nurses at the Royal Brompton Hospital who looked after our little man and helped him along his speedy recovery. The Brompton Fountain family support charity helped make the whole experience a little more bearable, from the bigger things, like helping us with a room to stay close to Edward, to the little things, like having tea in the parents’ room. They even supplied musical toys and fibre-optic lights for Edward to enjoy during his recovery period.
Thank you for giving my little boy his life.
Proud parents of Edward – Jon and Kellie