Additional Charities, Groups and Organisations

Below is a helpful list of additional charities, groups and organisations that provide information and support to families. The list covers cardiac and respiratory conditions, specific associated syndromes and other health complications.

Respiratory Support and Information

Associated Syndromes, Support and Information

Other useful charities and organisations

Useful books

Financial Support

Travel Insurance

Travelling with children with medical conditions can mean you need extra protection. We’ve compiled a list of companies that other parents have recommended to us over the years:

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