Katie’s story
Written by Mum Charlotte

Katie, aged 9, has a condition called Supra-Ventricular Tachycardia. When she has an episode, her heart beats very hard and fast, doing 240 beats per minute. It is as if her heart is trying to burst through her chest, and she experiences chest pain, blurred vision, dizziness, shaky limbs, constant chest flutters, headaches, dizzy spells and nausea. She also gets tired very quickly. Despite all this, Katie tries not to let her condition stop her from taking part in her favourite activities, which are street dancing, karate, swimming and playing the piano. Katie is on medication but will also need an operation at some point.

Katie was referred to the Royal Brompton Hospital Children’s Cardiac Unit by her local hospital when she had a severe episode during her swimming lesson. She became very distressed and started sinking in the water as she had no control over herself.

Her family have been fundraising for the Brompton Fountain family support charity for over a year now, doing various events as their way of saying a massive thank you to EVERYONE at the Brompton for the amazing work they do and the wonderful way Katie has been cared for. Katie wanted to do something for the Brompton Fountain herself, so asked if she could take part in the Superhero run to raise funds for the charity that she owes so much.
The Brompton Fountain team are very grateful for all the support already given to the charity by Katie and her family. (edited)


More families we have helped

Edward's Story
Edward David Nash was born with AVSD (Atrioventricular septal defect). This condition had been picked up prenatally, so we knew what was to come. Edward often had cold hands and feet and a very pale complexion due to poorly oxygenated blood. He would also struggle to feed, becoming breathless and tired. At four and a half months old, Edward was admitted to the Royal Brompton Hospital Children’s Cardiac Unit for his planned heart surgery.
Daisy’s Story
Daisy was born in September, weighing a very healthy 8lbs 4. Everything was fine for the first three months, then on New Year’s Eve, she was diagnosed with hip dysplasia and fitted with a hip harness for four months. This seemed to solve the problem, but soon after, we noticed she had very poor muscle tone and wasn’t doing the things a typical 4-5 month old should be doing, like holding her head up, and she was very floppy.
Isabel’s Story
I was 30 weeks pregnant when I discovered our baby was going to need heart surgery following her diagnosis of Coarctation of the Aorta, as well as a VSD (Ventricular Septal Defect) and three ASDs (Atrial Septal Defects). Our world fell apart; we had never even heard of these conditions before, and I felt terrified.

What are you searching for?

Popular Searches