Jack's story
Written by Mum Sarah

Our gorgeous Jack was born on 25th January 2012, three weeks early, but a healthy 6lb 6oz. He was a normal baby, and we proudly got on with life as a family of four.

But then Jack started having many chest infections and blue spells, and on one of these occasions, we took him to an out-of-hours GP. It was at this appointment that, aged nine months, the doctor picked up a heart murmur.

Jack was referred to our local hospital, and in March 2013, he was diagnosed with Tetralogy of Fallot. He was then directed to The Royal Brompton to confirm the diagnosis. We were devastated that our baby boy was so poorly and didn’t know what the future would hold.

Four weeks later, we got the phone call to say Jack was to have his operation, and we travelled to the Royal Brompton, where Jack was admitted to Rose ward for his pre-op checks. The following day we handed our baby over to cardiac surgeon Mr Uemura and his team. After six long hours, the team informed us that the operation had gone well, and we could see Jack in the Paediatric Intensive Care Unit.

Nothing could prepare us for seeing our little boy covered in all those tubes and wires, and I was heartbroken, but he was alive and had handled the surgery well. After a shaky start, he was well enough to return to Rose ward after a day and a half, which amazed us all. Jack continued to make brilliant progress, and we left hospital after six days to come home and be a family again.

We cannot thank everybody at The Royal Brompton Hospital enough for everything they have done for us. We met some wonderful children and parents who we are proud to say will be life-long friends.

Jack is still doing fabulously well, and we are very proud of him.

Mummy, Daddy and big sister Imogen love him to the moon and stars xxxxxxx

More families we have helped

Edward's Story
Edward David Nash was born with AVSD (Atrioventricular septal defect). This condition had been picked up prenatally, so we knew what was to come. Edward often had cold hands and feet and a very pale complexion due to poorly oxygenated blood. He would also struggle to feed, becoming breathless and tired. At four and a half months old, Edward was admitted to the Royal Brompton Hospital Children’s Cardiac Unit for his planned heart surgery.
Daisy’s Story
Daisy was born in September, weighing a very healthy 8lbs 4. Everything was fine for the first three months, then on New Year’s Eve, she was diagnosed with hip dysplasia and fitted with a hip harness for four months. This seemed to solve the problem, but soon after, we noticed she had very poor muscle tone and wasn’t doing the things a typical 4-5 month old should be doing, like holding her head up, and she was very floppy.
Isabel’s Story
I was 30 weeks pregnant when I discovered our baby was going to need heart surgery following her diagnosis of Coarctation of the Aorta, as well as a VSD (Ventricular Septal Defect) and three ASDs (Atrial Septal Defects). Our world fell apart; we had never even heard of these conditions before, and I felt terrified.

What are you searching for?

Popular Searches