The Cystic Fibrosis specialist team work with children and families providing ongoing support for the management of cystic fibrosis, providing a personalised service across inpatient, outpatient and care at home, in partnership with other health professionals.
The clinical nurse specialists (CNSs) in children’s cystic fibrosis care work closely with hospital and community teams. Their specialist service promotes continuity of care for around 320 children, young people and their families from diagnosis through newborn screening to transition into adult CF services.
They provide clinical monitoring, education, support and advocacy for patients in hospital, at outpatient clinics, and in the community both at home and at school.
Clinical nurse specialists – children’s Cystic Fibrosis