The paediatric respiratory nurse specialists work with children (and their families) with non-CF respiratory disease, including asthma, primary ciliary dyskinesia (PCD) and bronchiectasis, providing advice and support from diagnosis through to transition and on to adult services.
They attend all non-CF respiratory clinics to provide education and support, and also provide telephone and email advice. The team liaises with local hospitals, community teams, and schools to ensure families are supported in the community.
Their service includes running the first stage of the Difficult Asthma Protocol, which includes a nurse-led clinic and a home visit. They also now have a PCD management service which has enabled joint visits with the PCD physiotherapist to patient’s homes and schools, setting up a session of chest physiotherapy at school where possible.
Telephone: 020 7351 8714