The teams of clinical nurse specialists (CNSs) are here to help you and your family medically, practically and emotionally, and all nurses are trained in their area of care.
The team work with children and their families from the point of diagnosis; for the fetal nurses this is before birth. Some nurses, such as the Cystic Fibrosis team, first meet the family in the home when a baby has been identified by newborn screening.
CNSs are key in the transition process for young patients who are growing into adulthood. They provide support, advice, education for hospital staff and colleagues in the community, with whom they work closely.
All nurses can; give written information to back up the information you are hearing, discuss what this means for your child and family, help you plan how to manage at home, talk with health professionals and put you in touch with other organisations which might help you. They can also talk with your child’s school if you wish, to help them give the right care for your child if needed.
If you want to contact a specialist nurse, please select the correct tab on the left.
IF YOU ARE AT ALL WORRIED ABOUT YOUR CHILD, YOU SHOULD CONTACT YOUR GP OR CALL 999 IN AN EMERGENCY.