Jack's Story

In the words of his mum Sarah:

Our gorgeous Jack was born on 25th January 2012, three weeks early but a healthy 6lb 6oz. He was an apparently normal baby and we proudly got on with life as a family of four.

But then Jack started having lots of chest infections and blue spells, and it was just by chance when, at the age of 9 months we took him to an out of hours GP with yet another chest infection, this doctor picked up on a heart murmur.

Jack was referred to our local hospital and in March 2013 he was diagnosed with Tetralogy of Fallot. We were devastated that our baby boy was so poorly and didn’t know what the future would hold. We were then referred to the Royal Brompton Hospital and they confirmed this diagnosis.

Jack.Photo2Four weeks later we got the phone call to say Jack was to have his operation, and we traveled to the Royal Brompton where Jack was admitted to Rose ward to have his pre-op checks. The following we handed our baby over to cardiac surgeon Mr Uemura and his team, and after six long hours we were told the operation had gone well and we could see Jack in the Paediatric Intensive Care Unit.

Nothing could prepare us for seeing our little boy covered in all those tubes and wires and I was heartbroken, but he was with us and had handled the surgery really well. After a shaky start he was well enough to go back to Rose ward after a day and a half, which amazed us all. Jack continued to make brilliant progress and we left hospital after six days to come home and be a family again.

We cannot thank everybody at The Royal Brompton Hospital enough for everything they have done for us. We have met some wonderful children and parents who we are proud to say will be life-long friends.

Jack is doing fabulously well and we are very proud of him.

Mummy, Daddy and big sister Imogen love him to the moon and stars xxxxxxxJack.Photo5Jack.Photo4Jack.Photo3Jack.Photo1