From her mum Claire:
Calico was diagnosed with Cystic Fibrosis (CF) on November 6th 2012 through the newborn heel prick test. This was our first visit to The Royal Brompton.
Calico has to take 70 syringes a week of various medicines, a nebuliser and has 2-3 sessions of Physiotherapy a day to help keep her fit and well. In February of 2013 We spent 2 weeks in hospital having IV antibiotics as lots of mucus secretions were found on her lungs. Calico is a fighter and although she had to undergo 2 general anaesthetics in a week she ALWAYS has a smile for everyone.
With the fantastic support of theBrompton CF team Calico is living the life of a normal 16 month old and people find it impossible to believe that she has Cystic Fibrosis!
Cystic Fibrosis affects 1 in 2500 babies and 1 in 25 people carry the faulty gene, if two people carrying the faulty genes have a baby then there is a 1 in 4 chance of the baby having CF. It affects the sufferers lungs, pancreas, liver and intestine.
Calico and her family are working hard to raise awareness about Cystic Fibrosis and have a Facebook page ‘Calico’s Fight’.
CF stands for Cystic Fibrosis, CF stands for Calico’s Fight, CF will soon stand for CURE FOUND