Florence's Heroes

The story behind Florence’s Heroes – as told by her mum and dad

Our gorgeous Florence was born just over 6 weeks early in 2015, weighing in at a little over 3 lbs. She was immediately rushed off to the Neonatal Unit at Colchester General Hospital. At only a few days she was diagnosed with Hydrocephalus (a build up of fluid on the brain) and then not long after that her Congenital Heart Defects. In total she spent the first 104 days of her life in 3 different hospitals.

There are 3 services in her journey so far that we are so indebted to and thus “Florence’s Heroes Fund” was born. It is our pledge as a family and with the support of our friends to fundraise in various ways, not for Florence herself but for these services to enable them to go on helping other children.

 

  • Neonatal Unit at Colchester General Hospital – the care Florence received during her long stay on this unit was exceptional. As a family we remain thankful to this team every day for everything they did for Florence.
  • Paediatric & Neonatal Decision Support & Retrieval Service (PaNDR) previously known as ANTS – this is a regional NHS service providing critical care retrievals for neonates and children up to the age of 16 years requiring transfer from different locations across the East of England. In total Florence travelled with them 6 times in the first 3 months of her life.
  • Royal Brompton Hospital – there are few hospitals in the world that have the skills and expertise to perform open heart surgery to repair defects on a tiny 2month old baby weighing only 5lbs. This hospital is world class and without whom Florence would not be with us today.
 
We were delighted to receive an incredible donation of £15,000 through the Florence’s Heroes Fund in January 2025.

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